Charlotte scan results are in and
she is officially cancer free!! So many happy tears have been shed today!! Her MIBG scan and CT scan were clear. There
was no regrowth of the tumor in the original area. The eye orbit has still not completely healed
however there is no more tumor tissue in the orbit. The bone marrow showed no tumor cell
clusters. The scans of her heart look
good too!! The only news that we got that is less than exciting was that
Charlotte does have some minimal hearing loss in her right ear. The hearing loss is at pretty high frequency
and shouldn’t affect her much in the long run.
It will continue to be monitored at Cooks to see if affects her ability
to develop language later in life.
Charlotte
will now go to monthly check ups with her oncology doctor. She will have scans again at the end of
January. They will continue to do a CT
scan and an MIBG scan for a while but eventually I think she will go to just a
CT scan. They want to watch her very
carefully even though the scans are clear.
Due to Charlotte not truly being in a clear Neuroblastoma classification
(non-amplified N-Myc gene coupled with a secondary site
and other elevated pathologies put her at a higher intermediate risk, but not
high risk) she will continued to be
monitored closely to hopefully make sure the cancer does not come back. When we asked her doctor about relapse rates,
just trying to emotionally prepare ourselves for the future, she said she is
cautiously optimistic. Charlotte will
likely get her port removed after her first round of scans, so around the end
of January/beginning of February. This
will be an outpatient procedure.
God is so good. We
cannot thank you enough for all of your answered prayers!
“Dear Cancer, Thank you for making me stop and listen and
remember what’s important. You can go
now.”
#CharlotteStrong
#CharlotteCancerConquerer
Charlotte and one of her favorites, Sommer Charlotte and Lulu twinning on Halloween
All of the H/O nurses dressed as Wonder Woman :)
Charlotte and Ralph Future Dr. Charlotte :)
