Tuesday, November 20, 2018

ONE YEAR!!



Charlotte is one year cancer free.  As I type these words, I find myself overcome with emotion. A great deal of relief, but so much more than relief.  So much more than words are capable of expressing. There are so many days now that we live without even thinking about that evil little word—cancer.  However, without fail, every three months, that word has been a frequent reminder of all the things Charlotte has been through.  That word that stopped us completely in our tracks a year and a half ago.  That word that brought me scanxiety every three months.  Now with her being one year cancer free, our lives are changed once again, but this time, it’s for the better.  We now only have to receive scans every six months.
            A few updates on the information that we did receive from her scans:  there is still no evidence of disease anywhere in her body.  Her Echo shows that she still has an open PFO (patent foramen ovale), which from our previous understanding, means that it will stay open.  Some children born with PFOs do see it eventually close, however that will probably not be the case with Charlotte.  The doctors are not concerned with her open PFO. Around 25% of the population is estimated to have an open PFO.  Charlotte also still has her Bicuspid Aortic Valve as well.  The doctors will continue to follow and monitor this.  They have no concerns about this defect at this time because this is typically a condition that will need to be addressed in her 3rd to 4th decade of life.    Her clinic appointments are now every-other month.  We are moving to a life of more normalcy for her…for us.  She is truly a warrior, and we are so inspired by her.  We would like to thank all of you for your prayers and support.  We couldn’t have done it without y’all!