Wednesday, May 31, 2017

Home Again



        We are home! Last night Charlotte finished her last chemo transfusion around 6:45 pm.  Following her last chemo transfusion she had three hours of fluid.  The before bed last night we were able to disconnect from all fluids and everything. Charlotte was eating really well, so she did not need to have fluids throughout the night.  Charlotte had a really good night; she just did not like the every 2 hour wake up for diaper changes.  Charlotte just wanted to sleep! We are so grateful to our amazing nurses who were able to do the every two hour diaper changes so that Christopher and I could get some sleep.  While receiving chemo, Charlotte will always have her diaper changed every two hours because she is peeing out chemo chemicals and that can cause rashes among other problems.  The doctors came by fairly early this morning and they were really excited to see how well Charlotte was doing.  Shortly after that Charlotte's amazing nurse came in and asked us if we were ready to go home! Charlotte has had several good bottles today and has even enjoyed some bacon, hash browns and some pizza when we got home.  Now we are just home back in social isolation and enjoying our time with our puppy and family here. 
        I am so grateful for the incredible help that we are receiving at the hospital.  Cook Children's is the most amazing place with the most amazing doctors.  I knew God moved us back here for a reason last year, just over a year ago to the date, and I think this is why.  God knew the journey we would have with Charlotte and he knew where the best help in the world would be - here in Texas.  He knew we would need our family close to help us with Jax while we are in the hospital.  I am so grateful for our families who have taken time out of their lives and work to be here with us each time we have gone into the hospital so that Jax can stay at home and we could have the extra support.  We also have been so grateful to those here who have helped us out, especially those who took Jax in the first stent in the hospital before my family could come up.  We are so incredibly blessed. 

"She is clothed in strength and dignity and she laughs without fear of the future." Proverbs 31:25

#CharlotteStrong
#CharlotteCancerConquerer



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